Creating recovery resources in mental health – 1

This is a first of what may be a set of posts around the same theme- recovery in mental health or recovery from mental health issues, regaining one’s sense of wellbeing after an emotional/psychological setback.

The past year has gone in a lot of work in this area (also among the reasons I could not write on this blog). So now is the time to talk about the work which has been done away from the public eye.

Let me begin with the book, which comes out later this year, I put to bed a few months ago. Currently the last phase of that is underway- on the production front.

As an aside, a somewhat disconcerting thought which has always been there at the back of my head is that when we say the word ‘recovery’ in the context of mental health it conjures a particular kind of image. Recovery is often mistaken to be the recognition of someone’s suffering as a diagnostic reality. (Oh, but this was not the disconcerting thought I had in mind- it was about my book and how academic it is!)

Oh, now I know why I was feeling so bad. I have anxiety after all“.

I got a diagnosis of PTSD and chronic depression. I was also wondering what is going wrong.”

This description of suffering and its reframing into a diagnostic “truth” is what happens all the time in the field of mental health, something that troubles me immensely. But I will not go into that trouble right now. I better share with you what is the problem for me to solve here- the problem of talking about recovery.

I recovered from bipolar disorder. It may sound like something un-relatable, for one is not supposed to. In other words I am an outlier by all standards. This sudden disclosure is not part of my identity politics and I do not use mental health as a means for attention-seeking for I am troubled by it. For me my positioning is an ethical stance which comes with an agenda, largely research driven.

My agenda

My agenda post my own recovery was twosome. First it became to map my own recovery- for how did I recover?

I had no clear cut ways to share with another. I am talking about the year 2011. That was the time I started on recovery research, and a number of articles followed in diverse journals across the globe- Psychological Studies, Canadian Journal of Music Therapy, World Cultural Psychiatry Research Review and others (you are welcome to check them from my linkedin profile, ResearchGate or Academia networks. Oh yes, there is one article which is just a click away in which you can both read my (less academic) writing and hear my (self composed) songs (ghazals to be more precise). A longer piece of writing about the ghazal and its role in my healing is there in the World Cultural Psychiatry Research Review (2015).

My second agenda is/was to see if one person can recover, why are others not able to. Or rather, what is it that does not allow more people to recover- which became my PhD research (2016-2020)

Three decades in the field and five decades of life behind me, I know there was none other than this which was my goal, at least for now- recovery research. So while the research was done as a PhD and barriers to recovery found the next and more befuddling (may I say unenviable) option is how to tell others they can recover as well?

This is what I am doing nowadays- creating those other resources to disseminate the findings from my work, advocacy about recovery from mental health issues and suchlike things.

I am not going to say further in this post except having introduced the context- of who I am, where I come from and why I talk about recovery so much. And yes the resources I am busy creating- resources for recovery, advocacy and helping others recover just as well as me.

The first put to bed was the book of course. I will talk about it closer to the time it publishes (later this year)

The second is DIALOGUES FOR RECOVERY with the support and handholding by Vidya Sagar, Chennai. Here is a sample of that work, though we are not yet adept with this sort of work. Whatever else is unfolding is still firming up and I will share about them in subsequent posts. But I invite you to read the writing I have shared, which are scores of articles about my recovery and where I stand today, or what ideas I propagate via diverse means. The video that follows is a sample. There are at least five others of its siblings you can check from the same link and you get to hear my other ideas too (not mine solely, of course for we all stand on the shoulders of giants after all) …

One of six parts of a single discussion between Prateeksha Sharma, Bright Side Family Counseling Center and Poonam Natarajan, Vidya Sagar, Chennai




Let’s talk about ‘recovery’ in mental health

Of all the things one gets to hear about mental health, we often do not hear the word ‘recovery’. This implies that though society encourages people to examine distress-causing issues through the lens of suffering or accessing mental health treatments, the acceptance of people once they enter treatment regimens is markedly changed. Do treatments have to continue for life and if yes, then what is the goal of such treatments? Do we need to talk about recovery at all, for is not the start of treatment the start of recovery itself? The answer to this question is both yes and NO, for it depends upon whose perspective is considered. In other words, depending upon stakeholders the perspective changes!

‘Recovery’ is an individualistic, cumulative outcome of diverse resources which add up to make someone healed, and whole

Introducing the series

This weekly series, much like the writer behind it, is dedicated to the idea of ‘recovery’ . It brings together an experience of engagement with the field for nearly three decades, of which the last decade (2010-2020) is spent exclusively on the idea of researching about ‘recovery’ or whether it is viable for a vast majority of people. This recovery series will principally be a response to the queries the writer, in her role as therapist, receives from diverse platforms, including emails which reflect people’s struggles to reclaim their mental wellness and lives, instead of necessarily looking at them through diagnostic categories.

Why should recovery matter?

When someone accepts the medical diagnosis of a mental health issue, they enter into the stage of becoming a patient. In that role they keep on getting treatment for years and years, and there seems to be no exit; especially when the diagnosis is schizophrenia and bipolar disorder. Not only psychoses, increasingly people are coming under the remit of mental health diagnoses and unable to exit the ‘system’ for a lack of alternatives to reclaim their mental health and a reinforcement received from different ‘professionals’, the social milieu saturated with claims of rising incidence of mental health issues and efforts which are purportedly directed at stigma reduction. In such an environment anyone who gets a diagnosis, and their families, are so overwhelmed by the one sided representation of mental health as an illness claim that to think about recovery is certainly not on anyone’s mind; but only to get themselves/loved one treated and manage the ‘illness’.

A vast majority of people are unaware that mental health issues are not measurable ‘illnesses’ which can be established by any scientific evidence, pathological tests or measurements via any scales etc. What can be called ‘illness’ is dependent largely on the capacity of the person who is observing the disturbed person to pronounce a behaviour as ‘illness’ or an ab-normalcy; which in research is called epistemic privilege (someone’s knowledge given more credibility than another’s). This is NOT to say that a person who is experiencing suffering is faking their suffering or masquerading. This is to acknowledge their suffering as a reality which needs a different handling than a simple classification into a predetermined diagnostic category. This is simply to say that mental health issues are not biological illnesses which are treatable via biochemical means, the way they are made out to be- they are deep emotional disturbances which can also be resolved by talking, discussion and other ways, which we will examine in future articles here.

Recovery matters because the alternative, of lifelong patient-hood, is a painful, debilitating, disabling option for people/families and thereafter for society. It not only makes people dependent and insecure it leads scores of families into a downward spiral of infirmity and poverty. The usual option someone has is to either remain a patient, or having become a patient for a short while, when overwhelmed by suffering, take the path to recovery by slowly building their capacities to deal with life and its vicissitudes- a journey familiar to this writer. From thereon springs this urge to share these ideas/research and findings with fellow human beings and let others comprehend that if one person can recover, so can another- for this is how one lamp kindles another’s wick.

In the forthcoming posts you will read (when the posts are not direct responses to queries)

  • Why the idea of recovery is tied to human rights,
  • What are the three ways in which people can understand recovery
  • Why a majority of people do not believe they can recover
  • Stigma in mental health
  • Psychosis and recovery